I received a lot of positive feedback from an article I wrote title You Think You have Fibromyalgia, What Should You Do? Readers also asked questions all pointing to one clear question: Now that I have fibromyalgia, what should I do? I am going to answer that question in a ten part series called You Have Fibro, Now What? This part of the series answers the question many of us ask, “Are there others like me?”
Even before I was diagnosed with fibromyalgia, I constantly wondered if there were other moms experiencing the same pain. Playing with my kids at the park or running around the playground was out of the question. I was sad about so many things like, am I alone in this pain? Are there others like me?
Once I was diagnosed, I didn’t feel as alone in my pain, but I still wanted to talk with others like me. Exchange stories, gain support, among other things.
I’m here to tell you, from experience, that you are NOT alone. There are others just like you struggling with the same pains, dilemmas, and other situations. You just have to reach out and connect with them.You are NOT alone in your #pain. #fibromyalgia #chronicillness #spooniebloggers Click To Tweet
Now I know reaching out and connecting with someone is the last thing we, as fibromyalgia fighters, want to do. It’s exhausting to talk with others let alone leave the house to socialize. But in today’s technology, we can connect and receive the support we need without leaving the bed.
Online Support Groups
For a list of support groups, visit:
Fibromyalgia Facebook groups (and pages):
Type in ‘fibromyalgia’ in the search bar, then click ‘groups’ from the dropdown menu on ‘more’:
Also notice you can find fibromyalgia pages, too:
There are various Google+ communities about fibromyalgia. I find these communities to be a great resources and support!
From your Google+ home page, hover over ‘home’ to see the communities:
After clicking ‘communities’, you will go to the communities home page. From here you will see the communities you have joined and can search communities in the search bar at the top right of the page:
Instagram is also a great way to connect with others with fibromyalgia. Search ‘#fibromyalgia’ or similar hashtags to connect.
Searching Twitter for fibromyalgia articles is the best way I find information and connect with others about fibromyalgia. Search ‘#fibromyalgia’ or similar hashtags to connect.Connect with others on Twitter using #fibromyalgia Click To Tweet
Pinterest is one of my favorite ways to find fibromyalgia articles and other fibromyalgia related items. Follow me on Pinterest to connect with other fibromyalgia pinners.
Visit You Have Fibro, Now What to view all the parts of the series!
There are many ways to connect with other fibromyalgia sufferers. How do you connect online? Share in the comments.