You Have Fibro, Now What? Are There Others Like Me?

I received  a lot of positive feedback from an article I wrote title You Think You have Fibromyalgia, What Should You Do? Readers also asked questions all pointing to one clear question: Now that I have fibromyalgia, what should I do? I am going to answer that  question in a ten part series called You Have Fibro, Now What?  This part of the series answers the question many of us ask, “Are there others like me?”

Are there others like me? #fibromyalgia #chronicillness

Even before I was diagnosed with fibromyalgia, I constantly wondered if there were other moms experiencing the same pain. Playing with my kids at the park or running around the playground was out of the question. I was sad about so many things like, am I alone in this pain? Are there others like me? 

Once I was diagnosed, I didn’t feel as alone in my pain, but I still wanted to talk with others like me. Exchange stories, gain support, among other things.

I’m here to tell you, from experience, that you are NOT alone. There are others just like you struggling with the same pains, dilemmas, and other situations. You just have to reach out and connect with them.

You are NOT alone in your #pain. #fibromyalgia #chronicillness #spooniebloggers Click To Tweet

Now I know reaching out and connecting with someone is the last thing we, as fibromyalgia fighters, want to do. It’s exhausting to talk with others let alone leave the house to socialize. But in today’s technology, we can connect and receive the support we need without leaving the bed.

Online Support Groups

For a list of support groups, visit:

Fibromyalgia Facebook groups (and pages):

Type in ‘fibromyalgia’ in the search bar, then click ‘groups’ from the dropdown menu on ‘more’:

Facebook Fibromyalgia groups #fibrogroups

 

Also notice you can find fibromyalgia pages, too:

Follow me on Facebook!

Fibro Facebook pages #fibromaylgia

 Google+ Communities

There are various Google+ communities about fibromyalgia. I find these communities to be a great resources and support!

From your Google+ home page, hover over ‘home’ to see the communities:

Follow me on Google+

google plus communities

 

After clicking ‘communities’, you will go to the communities home page. From here you will see the communities you have joined and can search communities in the search bar at the top right of the page:

google plus communities home page

Instagram

Instagram is also a great way to connect with others with fibromyalgia. Search ‘#fibromyalgia’ or similar hashtags to connect. 

Follow me on Instagram

Twitter

Searching Twitter for fibromyalgia articles is the best way I find information and connect with others about fibromyalgia. Search ‘#fibromyalgia’ or similar hashtags to connect.

Follow me on Twitter

Connect with others on Twitter using #fibromyalgia Click To Tweet

Pinterest

Pinterest is one of my favorite ways to find fibromyalgia articles and other fibromyalgia related items. Follow me on Pinterest to connect with other fibromyalgia pinners.

Visit Being Fibro Mom’s profile on Pinterest.

Visit You Have Fibro, Now What to view all the parts of the series!

You have fibromyalgia Now what? #fibromyalgia #chronicillness #chronicpain

There are many ways to connect with other fibromyalgia sufferers. How do you connect online? Share in the comments.

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Brandi

I'm Brandi, follower of Christ, wife to an amazing, supportive husband, blessed mother to four sweet children, and a fellow spoonie. Facebook-+-Twitter-+-Instagram

4 thoughts on “You Have Fibro, Now What? Are There Others Like Me?

  • September 3, 2015 at 8:30 am
    Permalink

    This is so useful! I don’t have Facebook, and I’ve found myself in the Land of Overwhelm each time I’ve tried to search for online support groups (admittedly because I’ve become distressed and so I’m flailing blindly!). Your ‘map’ gives much more practical guidance for accessing support, thankyou *smiles*

    Reply
    • September 3, 2015 at 12:32 pm
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      You’re welcome! I’m so happy it was useful for you.

      Reply
  • October 13, 2015 at 7:08 pm
    Permalink

    Brandi- I was diagnosed last Spring, and the thing I most wish for is a friend or two that truly understands what I’m going through. I have joined a couple of online groups, but I would like to find somebody to talk to on the phone, or perhaps even meet for lunch when we are both feeling up to it. I’m a single mom, and I live in Greensboro, North Carolina, with no family within a ten hour drive. My boyfriend works a lot, and though sympathetic, he doesn’t really get it, either. I just think if I had some girlfriends who also had fibro, life would be much better. Any suggestions?

    Reply
    • October 16, 2015 at 7:28 am
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      It is comforting to have friends that can relate and understand the pain you’re going through. Search for local support groups in your area to connect with others experiencing the same pains and emotions. There are others looking to connect as well. I wish you the best of luck! God bless

      Reply

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