Welcome to Fibro Fridays Replay! Each Friday we will have a live video feed on our Facebook page to address questions, comments, concerns and suggestions that we receive each week. Topics include parenting, treatments, books, products, and more about fibromyalgia. This replay post will include the video and links to expand on those topics. I also included links to where these products can be purchased, Facebook groups, Pinterest pages, and other website links.
Discussing fibro events, chores for kids, #kratom, and fibro courses #FibroFridaysLive… Click To Tweet
Here is the video playback with the links to the topics discussed below:
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Summary of our week
- Our oldest daughter had pink eye. Not fun for anyone especially the one with red, puffy, mucus-y eyes.
- House project: the room in the garage – it’s GONE!!
- Abby’s birthday party is this weekend along with lots of rain. Watch our follow up video of fibro and kids’ birthday parties.
- Gearing up for upcoming events to spread knowledge about fibro: For all current events for May 2017, please visit my events page. If you know of any events, please contact me.
- Met with a fellow fibro thriver and we discussed their fibro journey, options tried for relief, goals, books for fibro, fibro diet and more. If you’d like to schedule a chat via video or phone, please contact me. This is a free service*.
*Disclaimer: I am not a healthcare professional and can only lend my experience and knowledge. As always, please discuss your treatment with your physician.
My Weekly Reading
Yay! I’m done with one book, so I’m only reading three right now!
- The FibroManual by Dr. Liptan (summary below)
- Chronic Resilience by Danea Horn
- Scarlett by Alexandra Ripley
The FibroManual by Dr. Liptan
“The most up-to-date, comprehensive treatment guide to fibromyalgia, by a renowned physician who herself has the condition
If you suffer from fibromyalgia and are struggling to get help from your doctor, you’re far from alone. Ten million Americans experience the widespread muscle pain, profound fatigue, and fuzzy brain (“fibrofog”) that have long frustrated both patients and doctors. In this unique resource, Ginevra Liptan, M.D., shares a cutting-edge new approach that goes far beyond mainstream medical knowledge to produce dramatic symptom improvement.
Dr. Liptan’s program incorporates clinically proven therapies from both alternative and conventional medicine, along with the latest research on experimental options like medical marijuana. Since many health care providers have limited fibromyalgia expertise, The FibroManual includes a thoroughly sourced “health care provider guide” that enables readers to help their doctors help them.
Alleviate fibromyalgia symptoms in four simple steps (Rest, Repair, Rebalance, and Reduce) and you will
- restore deep, restful sleep
- achieve long-lasting pain relief
- optimize hormone and energy balance
- reduce fatigue
This accessible and empowering resource provides essential information about understanding and treating fibromyalgia from a physician who, as both patient and provider, understands the illness from the inside.”
– Amazon website book description
We all have to do chores, and I know why we need them, but they are a pain! Literally. I don’t mind doing chores – as long as I can do it when I want to do it. When I feel like doing it. If only it could be that way!
And as of Friday morning, I’m caught up on laundry!! Of course, that is not the case now that it’s Saturday morning and my laundry is ready to be done again. And it’s been less than 24 hours. Bummer.
Fibro courses at a medical center
Someone in our fibro parenting group said she was on a waiting list to attend a course on how to deal with fibro. I’ve never heard of it, so I did some research. I could not find any fibro courses through hospitals in the US; however, I did find pain management courses.
The course that was linked for me in the comments of the thread pointed to a fibro course for the Royal National Hospital for Rheumatic Diseases in the UK. The program helps with self-managing fibro and is a few weeks. For more information, visit the website: http://www.rnhrd.nhs.uk/page/94
While looking for courses through hospitals, I came across a few courses that are online. Out of curiosity, I signed up for a paid fibro course through the website CFIDS & Fibromyalgia Self-Help. You take the introductory course which is seven weeks in a group of 15-18 people. I’ll let you know how it goes and if it’s worth the $$. That will be sometime in June or July (my course begins in April). For more information, visit: http://www.cfidsselfhelp.org/online-courses/introductory-self-help-course
Kratom is natural plant found in Southeast Asia and is in the coffee family. Coffee? Well, I know already it’s good! The leaves of the plant are used as an herbal supplement and remedy for hundreds of years. It can be used to increase energy and pain relief. Some says it works and others say it don’t.
Kristin, Fibro Fighters Under 40, suggested visiting the websites for more information:
There is a Facebook group that Kristin recommends called Kratom Therapy and there’s a pinned file in the group called “The Beginner’s Guide” that is a great place to start.