The First Year: Fibromyalgia: An Essential Guide for the Newly Diagnosed

Upon my diagnosis of fibromyalgia in the Winter of 2012, my physician let me borrow The First Year: Fibromyalgia: An Essential Guide for the Newly Diagnosed in order to grasp a better understanding of my condition. It starts with the first day of diagnosis and covers day by day for the first seven days, then the first few weeks, and then the last months of the first twelve months of being diagnosed. It covers, in detail, the symptoms; known origins (so far, but the origins are still largely a mystery); treatments; and personal stories of affected women and men.

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The First Year: Fibromyalgia

Here is the book description of The First Year: Fibromyalgia on Amazon:

“Fibromyalgia affects between three and six million Americans—80 percent of whom are women—yet remains one of the most difficult conditions to identify and diagnose. In the tradition of the other titles in the First Year series, The First Year—Fibromyalgia uses a unique approach—guiding readers through their first seven days following diagnosis, then the next three weeks of their first month, and finally the next eleven months of their first year—to provide answers and advice that will help everyone newly diagnosed with fibromyalgia come to terms with their condition and the lifestyle changes that accompany it.

Starting with the day of diagnosis, patient-experts Florence and Marek provide vital information about the nature of fibromyalgia, choosing the right doctors, treatment options, psychological issues, holistic alternatives, self-management strategies, illustrative charts and tables, and much more. The First Year—Fibromyalgia will be a supportive and educational resource for everyone who wants to take an active role in the management of their condition.”

Why it’s an essential guide for the newly diagnosed

I really thought all adults lived with daily pain and other ailing symptoms and that I was too weak to push through the pain. Many, many days as I sat on the bench taking a break at the playground with my kids; I would look around and wonder how my fellow playground parents were so happy and pushing through the pain when it just hurt so much!!

What NOT to do when family visits for the holidays #TheFibromyalgiaMagazine #BeingFibroMom
My in-laws with my four children.

I was falling apart on the inside with pain and anxiety, wondering why I couldn’t be strong like the other parents. I wanted so much to play with my kids, run around with them, and be the fun mom I desperately wanted to be so very much, but the pain was too great at times.

The pain would break me. I wanted to hide in my bed, under the covers, and stay there. What was wrong with me?

My youngest son and me playing Battleship.

Until this book, I had no idea that I was a part of a community of people living with fibromyalgia and chronic pain. When I read a similar playground story in which a fellow parent was unable to play with their kids, I cried. I cried a lot.

Many emotions were flowing through me at that point –

  • anger
  • relief
  • self-pity
  • sadness for my kids to have a mother so sick
  • confusion
  • depression
  • anxiety
  • desperation
  • anger – I mention it again because I had a lot of it.

This book was an eye-opener for me. I read it cover to cover, leaving no page unread. It brought a lot of comfort to me, and it was hard to return the book to my physician the following months. Even though this was an emotional read for me, I am grateful to have been given it to read.

What books do you know of for fibromyalgia? Please share in the comments below!

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created by Brandi Clevinger using the image from © ismotionprem at www.stock.adobe.com

 

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Brandi

Hi, I’m Brandi, the writer and creator of Being Fibro Mom and My Fibro Journal. Aside from my work on Being Fibro Mom, I run a group called Fibro Parenting on Facebook. I've been writing for the Fibromyalgia Magazine since 2016 and recently became the Secretary and Fibro & Families program director for International Support Fibromyalgia Network. Facebook-+-Twitter-+-Instagram

11 thoughts on “The First Year: Fibromyalgia: An Essential Guide for the Newly Diagnosed

  • July 10, 2014 at 10:25 am
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    This book was helpful to me, too. I have mourned for many of the activities I used to enjoy. I had to give up teaching. I think it is true that we don’t realize how much health we have until we no longer have it.

    Reply
    • July 10, 2014 at 2:08 pm
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      That is very true. I try to focus on the activities I can do now rather than on what I use to do. Or just moderate some of the activities so I can still do them to a degree. I’m glad this book was helpful to you!

      Reply
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  • February 14, 2016 at 3:54 am
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    I wish I knew about this book sooner. I just hit my one year mark… well, one year of being officially diagnosed. But, having a guide or book would have been so nice. The other thing that’s helped me is also http://www.myfibroteams.com. It was my first time chatting with other people who had it. When I read some of the statuses… I was like, hey! that happens to me too. Its so hard because all those MD sites really don’t list all the symptoms. I really didn’t understand what I had. I’m going to get this book. Thanks for recommending it!

    Reply
    • February 15, 2016 at 7:11 am
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      I’m glad I could help! Thank you for the fibro teams link. I’ll check it out.

      Reply

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