When living with a chronic illness, there is no certainty. Symptoms wax and wane from hour to hour, day to day. Delays and cancellations occur, and the only thing reliable is the unreliable. With the uncertainties of a chronic illness, having a routine is an essential element. Here is why routines are important with a chronic illness.
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What’s the difference between routine and schedule?
Notice I said routines are important with a chronic illness. Not schedules. Let’s clarify the difference between routine and schedule. The difference is why routines, and not schedules, are important with a chronic illness.
Dictionary.com defines routine as
commonplace tasks, chores, or duties as must be done regularly or at specified intervals; typical or everyday activity
The site defines schedule as
a series of things to be done or of events to occur at or during a particular time or period; a timetable
The major difference between schedule and routine is the time factor. A schedule is a set of activities done at a specific time. A routine is a set of activities done regularly with no specific time. Think of a schedule as a task you do at certain times such as an appointment. Think of a routine as something you habitually do in and out each day such as going to bed.
Why routines are important with a chronic illness
Schedules, I know, are ideal for kids. The benefits of a schedule for kids are:
- more restful sleeping
- more attentive to other family members
- less whining
- more laughing
- playing more with their siblings
- more interactive with the family
- better listening
- more obedient
That’s a lot of benefits! But do adults get the same benefits from a schedule? Yes, they do! But do adults living with a chronic illness get the same benefits? Not in my opinion.
Having a chronic illness means expecting the unexpected. Changes in plans will occur. Days will not go as planned. Events, no matter the preparation, will get delayed or canceled all together. Anxiety or depression hits. Flare up of symptoms happen without warning. That is where having a schedule becomes difficult.
Routines have benefits
Routines are more beneficial when living with a chronic illness. It’s like having a schedule, but without the time constraints. Routines have the same benefits, but with the added freedom of when you do those tasks. Having a routine will also help you get more quality sleep which is essential in living with a chronic illness. It will also help you remember to take supplements or medication as well as stretch or do a similar beneficial exercise.
For example, for my summer routine, I wake between seven and eight each morning. It’s breakfast while watching Good Morning America and coffee with Live with Kelly and Michael. I keep my supplements by my Keurig to help me remember to take them. Read more about my daily natural regiment to treat my chronic pain.
This is how I prepare for the day – taking it slow and easy. During this time I’ll feed the kids breakfast as they ask for it and get any activities they may want. I may work on my blog or do some social networking. Nothing is set in stone.
Around noon, it’s lunch time followed by resting time. The little one naps while the older kids choose quiet activities (electronics, reading). I either rest, read, do housework, prepare dinner or write. Late afternoon I may run errands or do a fun outdoor activity with the kids. This is completely dependent on my mood and how the kids and I are feeling. If no one feels up to it, then we stay home or go swimming.
In the evening when my husband gets home, it’s dinner time. Then we spend time with the kids. We talk about our days or play a board game until their bed time between seven and eight. Then my husband and I have time together until our bed time between ten and eleven. The weekends are more open to doing whatever. We have a routine of waking up, eating our meals, and going to bed around the same times. What we do and the times we do them are more lenient on Saturdays and Sundays.
As you can see, nothing in my day is concrete or marked by a definite time slot. I have the leisure of going with the flow of symptoms and aiding to them if needed. It’s much less demanding and stressful for me and the entire family.
Having a routine does not mean the kids do not get the benefits of a schedule. In a way, they have the security of knowing about when and how their days will happen. They reap the benefits of a schedule while I reap the benefits of a routine. It’s a win-win situation.
Once school starts, not a whole lot will change. I will have a specific time for waking up to get the kids to school and picking them up from school. That will most likely be the only changes. A routine keeps my stress levels and anxiety to a more manageable tolerance. If a flare up occurs, there’s not a schedule to worry about. Read more about how to manage flare up of symptoms.