Temperature Sensitivity in Fibromyalgia by FibroDaze

In her article Temperature Sensitivity in Fibromyalgia, by Sue from FibroDaze, Sue expands on the subject of the fibromyalgia symptom of getting cold. There are many symptoms to fibromyalgia which vary in severity person to person. And each person with fibromyalgia will tell you that one symptom is more annoying than any other symptom. For me, it’s how easy I get cold. 

Temperature Sensitivity in Fibromyalgia #fibromyalgia #fibro

After reading this informative post, I was much more aware of how and why I get easily cold. And I now know the right questions to ask my physician regarding this dilemma.

Do you have a temperature sensitivity? Share in the comments.

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Brandi

Hi, I’m Brandi, the writer and creator of Being Fibro Mom and My Fibro Journal. Aside from my work on Being Fibro Mom, I run a group called Fibro Parenting on Facebook. I've been writing for the Fibromyalgia Magazine since 2016 and recently became the Secretary and Fibro & Families program director for International Support Fibromyalgia Network. Facebook-+-Twitter-+-Instagram

18 thoughts on “Temperature Sensitivity in Fibromyalgia by FibroDaze

  • May 13, 2015 at 8:19 pm
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    Yes! I get cold feet ALL the time. My 2 last doctors pooh-poohed me when I told them I think I have fibromyalgia.
    I am currently looking for a new doctor.
    Found you from Inspire ME Monday Linky PArty

    Reply
    • May 14, 2015 at 10:13 pm
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      Yes, definitely look for a new doctor! My feet get cold, too, and my doctor ruled out diabetes first. Now it’s just annoying. I freeze all day, but sweat at night. Thank you for commenting!

      Reply
  • May 17, 2015 at 8:43 pm
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    I’m one of those “sensitive to both heat and cold” folks. I used to be better about handling hot weather, but last summer was pretty miserable for me since the heat triggered nausea too. 🙁 I have a lot of cardigan sweaters for when I go inside grocery stores or shopping malls with their refrigerated air conditioning temperatures.

    I had no idea there were temperature regulating bed sheets! I need to track some down, because that would really help with my night sweats.

    Reply
    • May 18, 2015 at 1:52 pm
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      I didn’t know about those bed sheets!! Definitely checking that out. I also have a sweater with me wherever I go. My hot and cold flashes are terrible! Tahnk you for commenting!

      Reply
  • May 20, 2015 at 9:31 pm
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    I didn’t know about temperature sensitivity as a symptom. I often feel cold but just figured the 4 guys I live with are more warm blooded than me. Anytime I am cold I cuddle with one of the younger ones, they are like pocket heaters 🙂 pinning to our Small Victories Sunday linkup board.

    Reply
  • May 10, 2017 at 2:16 pm
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    First visit to my rheumy he asked me if I’ve ever been abused or traumatized. I told him no abuse but that my first memory of life is at 4yrs someone came to our door and told us my dad was in a bad accident. He died two days later. He said that will do it. I truly think I’ve had Fibro/Sjogren’s all my life. I remember having symptoms as a child.

    Reply
    • May 11, 2017 at 6:25 pm
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      Many fibro patients have it triggered by a trauma such as that. I’m sorry you’ve had to go so long without a proper diagnosis or knowing why.

      Reply
  • May 10, 2017 at 2:19 pm
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    Forgot this part…And yes, I’m cold all the time. Have a sweater that goes with me everywhere. Can’t spend time outside in the summer because my body doesn’t regulate temperature and I get way overheated.

    Reply
    • May 11, 2017 at 6:26 pm
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      I also have a sweater that goes everywhere. I think I got overheated today and I reacted poorly to it.

      Reply
  • July 29, 2017 at 8:54 am
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    I am always cold at work and people around me makes fun of me wearing cardigans all the time.When I come home I turn up the fire place and sit in a cozy blanket have a tea. I struggle at home when every body is Home they turn up the AC then I feel I have no place to go. When I was diagnosed with Fibro, Neorologist told me that we have no cure for this disease and I have to change my life style ( I.e change food, more exercise) monitor which food triggers pain in the body and make sure body is moving all the time. I have heal spurs as well I can’t walk or stand for so long. Specially when I am cold and in pain, don’t like to move around, I m glad that I can talk about and people out there understand me if not family

    Reply
    • August 4, 2017 at 10:39 am
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      I get the same way when it comes to being cold. I’m cold all the time, and I get muscle soreness from shivering when I’m cold.

      Reply
  • March 14, 2018 at 4:17 pm
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    I’m always cold. I got an electric blanket. It seems to help my fibro pain and also to sleep better. Even with the blanket, my feet stay cold. Now I’m wearing socks in addition.

    Reply
    • March 29, 2018 at 11:49 am
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      Yes, I’m the same! BRRRR

      Reply
  • April 11, 2018 at 7:36 am
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    I’m the opposite. I get way too hot! Sometimes I get so overheated in the shower that I will get the dry heaves and the only way to finish the shower is to turn the hot water completely off. Being outside in the summer kills me. My husband freezes year round because I leave the thermostat soblow plus a fan on me UGH!

    Reply
    • April 12, 2018 at 11:27 am
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      I know a few people like that, too. It seems to be either one extreme or the other.

      Reply
  • September 7, 2018 at 4:54 pm
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    I was wondering about the hot and cold spells happens a lot i also have heart failure and gastroparesis,hypogammaglobulinemia and
    Fibromyalgia i didn’t know which was causing the problem thank you❤

    Reply
    • September 9, 2018 at 12:06 pm
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      When living with fibromyalgia, it’s important to not dismiss any symptoms as simply ‘fibro related’. Be sure to discuss it with your physician to rule out any other possibilities. Hot and cold fluctuations can be other reasons and should be evaluated by your medical provider. Please let me know if I can answer any other questions you may have.

      Reply
  • October 4, 2018 at 6:00 am
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    I am having all kinds of weird things going on with my body and one of the major problems is with tempature. I seem to get very cold very quickly and can not warm up. So cold that it causes deep bone pain. However when i do get warm i get hot hot like sweaty hot and nausested. I often wake up during the night hot. Im 47 and thought well this must be the beginning of menopause but i now believe different because of all other symptoms. I go to the Rheumatologist tomoroww hopinh to have a diagnosis then so i can put a name to the way i feel.

    Reply

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