I Won’t Let Illness Stop Me From Living My Life

An illness can throw a person’s life plans way off track, and it’s at that moment when we can decide how to live life. Do we sulk in our misery and misfortunes and pray that something will take us back to the way we lived before? Or do we wait patiently while we heal all the while making a purpose out of illness in order to live our life in this new way? Amy Oestreicher was faced with that decision after an unforeseen turn of events in her life. Here is her story of survival and living life.

I wont let illness stop me from living my life
photo credit: created by Brandi, Being Fibro Mom, using the image of Amy provided by Amy
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I’ve spent a lot of time “waiting” in my life. As a kid I grew antsy with impatience, waiting until I was “older” to start dating, to go to the mall unsupervised, to learn how to drive. I was counting the days until I turned 18, giddy at the idea of college and independence at last. Two weeks after I turned 18, I was pulled into another realm where “waiting” took on an entirely new meaning.

photo credit: Amy Oestreicher
photo credit: Amy Oestreicher

When an unforeseen blood clot caused my body to go into septic shock, my life changed forever. Now, it was my devoted family who waited patiently and lovingly while I recovered from a three-month coma. When I awoke, I waited many more months before I could take a breath of outside air once again. I became extremely well-versed in patience — little did I know that I’ve have to wait eight more months before I was discharged from the ICU, over three years before I could drink a sip of water or eat a morsel of food again and 27 surgeries before doctors could create a makeshift digestive system for me.

As a born go-getter, I’ve never been great with “patience.” So I became extremely frustrated as doctors explained to me how “it would be a long road to recovery, but I’ll get there.” But healing physically and recovering my “self” emotionally, feeling my aliveness as well as being alive… I learned that this is a daily process, a life-long one. Life will not always be perfect, and there’s no reason to wait until things are.

photo credit: Amy Oestreicher
photo credit: Amy Oestreicher

I had this fantasy that the day I was finally discharged from the hospital, everything would be “back to normal.” I’d have my old body back — devoid of any medical scars, tubes, bags or IVs. I’d be eating and drinking again. I’d be able to run, jump and leap like I had in dance class just the week before my coma. These surgeries would just be a “blip” in my life, and now it could proceed as it was meant to.

But I learned something far better. I learned my life as I knew it had shattered, but I could reassemble the pieces differently, but still beautifully — like a mosaic. These “imperfect” shards of a life I longed to reclaim could create a work of art even greater, using the grout of experience and newfound wisdom.

photo credit: Amy Oestreicher
photo credit: Amy Oestreicher

A decade has passed since my life took an unexpected detour. It was a messy detour that put most of my anticipated life plans on hold, if not changing them completely. But this detour turned into the richest time in my life. To this day, I am still healing physically and emotionally. Every morning I make a new attempt to find who I am and to discover who I am becoming. If I had waited for life to be “perfect,” or at least for life to go back to “how it was,” I would have missed out on so many things. I would have never mounted my first solo art show after learning to paint in the hospital. I would have never written a one-woman musical about my life that I’ve performed for three years. And best of all, if I hadn’t had the audacity to set up an online dating profile for myself while still in my hospital gown, on IVs and recovering from a disastrous surgery, I would never be marrying the love of my life next month.

photo credit: Amy Oestreicher
photo credit: Amy Oestreicher

They say that all good things come to those who wait. But what for? Every day is an opportunity to learn, to grow and better myself. I love the imperfect twists and turns my life has taken, simply because they have made me who I am. It has been a mess, having life as I knew it shattered to pieces. But bit by bit it’s reassembling — different, imperfect, but beautiful all the same.

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Amy Oestreicher is a PTSD peer-to-peer specialist, artist, author, writer for Huffington Post, speaker for TEDx and RAINN, health advocate, survivor, award-winning actress, and playwright, sharing the lessons learned from trauma through her writing, mixed media art, performance and inspirational speaking.

As the creator of the Gutless & Grateful, her one-woman autobiographical musical, she’s toured theatres nationwide, along with a program combining mental health advocacy, sexual assault awareness  and Broadway Theatre for college campuses.

To celebrate her own “beautiful detour”, Amy created the #LoveMyDetour campaign, to help others thrive through difficulties.

As Eastern Regional Recipient of Convatec’s Great Comebacks Award, she’s contributed to over 70 notable online and print publications, and her story has appeared on NBC’s TODAY, CBS, Cosmopolitan, among others. 

She has devised workshops for conferences nationwide,  and is this year’s keynote speaker for the Hawaii Pacific Rim International Conference on Diversity and Disability.  Learn more: amyoes.com, and follow her on twitterinstagram and Facebook.

 

Learning to Live Again with Fibromyalgia #MenWithFibro
photo credit: stock image from Adobe Stock by © massimofusaro and modified by Brandi, Being Fibro Mom

 

photo credit: image created by Brandi, Being Fibro Mom
photo credit: image created by Brandi, Being Fibro Mom

 

A Prisoner of Hope #chronicillness #hemophilia #fibromyalgia
photo credit: stock image from Adobe Stock by ipopba and modified by Brandi, Being Fibro Mom

Brandi

I’m Brandi, follower of Christ, wife to an amazing, supportive husband, blessed mother to four sweet children, and a fellow spoonie.
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