May is Fibromyalgia Awareness, so during the month of May, I’m asking all fibromyalgia fighters, caregivers, medical providers and supporters to shine a purple light. Shining a purple light shows others that we accept fibromyalgia as a real illness, we are not ashamed of it, and we proudly support those living with it.
The team at the International Support Fibromyalgia Network had another successful Fibromyalgia Advocacy Day in DC this past March. We met with various legislators across two days, connected with new advocates, had an expected photoshoot with a Congressman on the Capital steps, and more! Check out the photos from the trip and what exciting news …
Fibromyalgia Advocacy Day took place on September 19, 2019, on Capitol Hill in Washington, DC. This is one step of many to making positive, ACTIVE changes in the fibromyalgia community. Read on to find out what Fibromyalgia Advocacy Day is and the impact it’s having on the fibromyalgia community. The Sun Shines on Possibilities As …
Fibromyalgia Advocacy Day: How Is It Impacting the Fibromyalgia Community? Read More »
My fibromyalgia journey started with a single diagnosis years ago and has connected me with other fibromyalgia patients around the world. Unintentionally and unknowingly, I became a fibromyalgia advocate along the way. This is how I became a fibromyalgia advocate and you may be surprised to find out you are, too. This article first appeared …
How I Became a Fibromyalgia Advocate (and How You Can, Too) Read More »
Fibromyalgia Advocacy Day took place in Washington, DC on September 19, 2019 and was well received by the Congress staff, participating advocates, and the overall fibromyalgia community. Overall it was a successful trip and we are gearing up for next year’s Advocacy Day! Here are some photos from this year’s trip, how we prepared for …
Fibromyalgia Advocacy Day 2019: Photos and Behind the Scenes Read More »
In the May issue, I told you about a new fibromyalgia awareness campaign, Ravyn’s Doll. This campaign was just an idea in my head that only took flight with the help of the members of the International Support Fibromyalgia Network. I spoke of them briefly in the Ravyn’s Doll is Spreading Awareness of Fibromyalgia article …
Meet the International Support Fibromyalgia Network Read More »
One of the hardest parts of living with fibromyalgia for me was telling others about it. Shortly after receiving the diagnosis, I knew I would have to face two inevitable facts: 1. Accept the diagnosis and learn to adjust my life to living with a chronic condition, and 2. In order to properly manage my …
Ravyn’s Doll is Spreading Fibromyalgia Awareness {with video} Read More »
Fibromyalgia is a complicated illness that affects more than 5 million adults* (this number does not include those individuals not properly diagnosed), and there are many more suffering in silence. In an effort to break that silence, I’m asking for all fibromyalgia thrivers and supporters to shine a purple light on fibromyalgia during the month …
