It’s important to know there are plenty of fibromyalgia resources at your fingertips. Here are some great places to start.
Being Fibro Mom Pages
The International Support Fibromyalgia Network
I am part of the amazing team at the Support Fibro. Our stories are different from what led us to join the nonprofit, but our goals are the same: to be an adequate and reliable resource to others.
The International Support Fibromyalgia Network (Support Fibro) is a patient lead nonprofit organization established in early 2017 to fulfill the unmet needs of the Fibromyalgia community. Support Fibro fosters collaboration among patient advocates, stakeholders, and promotes unity in the community through innovative patient and medical education, technology integrations, advocacy education, and biomedical research initiatives.
Everyone deserves positive healthcare experiences and with the help of our community leaders, Support Fibro is taking on Fibromyalgia in this new decade with fresh ideas. Support Fibro is a tax-exempt charitable organization eligible to receive tax-deductible contributions under IRS Code Section 501(c)(3).
Family & Fibromyalgia Program of ISFN
Our Family & Fibromyalgia program launched in February 2020! Our team is also headed back to DC in March 2020 to talk to legislators about fibromyalgia research funding. We had a successful trip in September 2019 for Fibromyalgia Advocacy Day. Read about how Fibromyalgia Advocacy Day is positively impacting the community. Check out the behind the scenes photos, too!
The Fibromyalgia Magazine
The Fibromyalgia Magazine is a monthly magazine created by the creators of UK Fibromyalgia and is composed of various writers within the fibromyalgia field. Features include research news, lobbying, awareness, educating, pain management, news, and more. With each purchase, digital or print, you are supporting the Fibromyalgia support groups in Britain, The Fibromyalgia Magazine‘s home base.
These are the books I’ve read and recommend about fibromyalgia.
List of Fibromyalgia Bloggers