Yes, some manage it better than others, and each person’s fibromyalgia varies. I hope to help each person better manage their pain using various resources, and sharing my experiences. Thank you for reading! Please feel free to share this page with others!
Fibromyalgia is not only a physical suffering with pain, it affects at emotional and mental level too. The person who suffers from fibromyalgia requires emotional support to fight this disease.
Brandi –
Is there a “universal” journal out there somewhere or even better – on your desk that we can use to track pain, activity, how meds are working etc ?
Hi, Rebecca! Yes!! Massages are a great way to help loosen the muscles and ease overall body aches. However, before starting a massage ask the therapist if they are familiar with fibromyalgia. There are certain massages that can be painful and cause more harm if done incorrectly on someone with fibromyalgia. Having a conversation about it beforehand would be the best approach. Myofascial Release Therapy is one of the best massage/therapies for fibromyalgia as it targets the fascia (the thin layer of tissue laying over the muscles). Let me know if you have any other questions!
In the fibro/trapezius muscle article, the blue box quotes use the abbreviation CWP, but I can’t find anyplace that states what these letters stand for. Can you tell me?
Thnx!!!
I’ve had fibromyalgia for 30 years now, even before they knew what fibromyalgia really was. I was a guinea pig with all the different meds they tested out on me to help with the pain. I developed bleeding ulcers a few times over the years before they realized lyrica was the way to go. The only problem I had was that by that time I already got the worse case ever of fibromyalgia. The meds help but taper off then have to re-acclimate to my body again. I’ve gotten pinched nerves, restless leg syndrome, herniated and slipped discs all related to fibromyalgia. It’s something most doctors don’t tell you that could happen. I’ve learned over the years how to compartmentalizations my pain along with what foods and drinks are okay to eat and what foods and drinks exacerbate the symptoms. I’ve also tried physical therapy, occupational therapy and water therapy to no avail. Each and everyone laid me up in bed for weeks even months at a time.
I love coming across sites like these where there are those who are willing to share their experiences and their advice and opinions, because let’s face it, most doctors don’t know what’s best especially if they’ve never gone through what we have. They only know the medical ways but not the true pain it causes. I hope that this site helps others understand the dos and don’ts of this illness. And that is also helps their families and friends to better understand what their loved ones are going through.
Unfortunately, there is no cure for fibromyalgia and the sad fact is that as time goes by it only gets worse. I wish those with this illness all the best and to stay strong.
I know several people with this. Some seem to manage it better than others. Everyone is different. Thank you for sharing this information.
Yes, some manage it better than others, and each person’s fibromyalgia varies. I hope to help each person better manage their pain using various resources, and sharing my experiences. Thank you for reading! Please feel free to share this page with others!
Very good information.
Thank you!
Fibromyalgia is not only a physical suffering with pain, it affects at emotional and mental level too. The person who suffers from fibromyalgia requires emotional support to fight this disease.
You are correct, and most of the time we overlook the emotional and mental effects, too.
Yea that true for me
Brandi –
Is there a “universal” journal out there somewhere or even better – on your desk that we can use to track pain, activity, how meds are working etc ?
Hi, Cindy! I asked Being Fibro Mom followers for their suggestions and you can see those ideas by CLICKING HERE.
Can people with fibromyalgia get massages done to them?
Hi, Rebecca! Yes!! Massages are a great way to help loosen the muscles and ease overall body aches. However, before starting a massage ask the therapist if they are familiar with fibromyalgia. There are certain massages that can be painful and cause more harm if done incorrectly on someone with fibromyalgia. Having a conversation about it beforehand would be the best approach. Myofascial Release Therapy is one of the best massage/therapies for fibromyalgia as it targets the fascia (the thin layer of tissue laying over the muscles). Let me know if you have any other questions!
In the fibro/trapezius muscle article, the blue box quotes use the abbreviation CWP, but I can’t find anyplace that states what these letters stand for. Can you tell me?
Thnx!!!
Hi, Shauna! Great question! CWP stands for Chronic Widespread Pain.
I’ve had fibromyalgia for 30 years now, even before they knew what fibromyalgia really was. I was a guinea pig with all the different meds they tested out on me to help with the pain. I developed bleeding ulcers a few times over the years before they realized lyrica was the way to go. The only problem I had was that by that time I already got the worse case ever of fibromyalgia. The meds help but taper off then have to re-acclimate to my body again. I’ve gotten pinched nerves, restless leg syndrome, herniated and slipped discs all related to fibromyalgia. It’s something most doctors don’t tell you that could happen. I’ve learned over the years how to compartmentalizations my pain along with what foods and drinks are okay to eat and what foods and drinks exacerbate the symptoms. I’ve also tried physical therapy, occupational therapy and water therapy to no avail. Each and everyone laid me up in bed for weeks even months at a time.
I love coming across sites like these where there are those who are willing to share their experiences and their advice and opinions, because let’s face it, most doctors don’t know what’s best especially if they’ve never gone through what we have. They only know the medical ways but not the true pain it causes. I hope that this site helps others understand the dos and don’ts of this illness. And that is also helps their families and friends to better understand what their loved ones are going through.
Unfortunately, there is no cure for fibromyalgia and the sad fact is that as time goes by it only gets worse. I wish those with this illness all the best and to stay strong.